Your gift will go further to change lives.
Ron Jobbagy and his wife Sheryl have had to overcome challenges, unimaginable to most, when both of their children, Alyssa, and Dylan, were diagnosed with cystic fibrosis (CF) at birth.
Alyssa and Dylan have now entered their twenties and are optimistic about beginning new chapters in their lives. Thanks to your support, we are closer than ever before to accessing the “miracle drug” Trikafta, and giving people like Alyssa and Dylan hope that their future will hold more than just fear and concern from their diagnosis.
“My only goal was to make sure my kids enjoyed each day and lived with a smile on their faces. Since the release of Trikafta (in the US), right now the goal I want to achieve is seeing the day they can both take that first pill… ” - Ron, father to Alyssa, 21 and Dylan, 23
Before Canadians can get access, there’s still a lot of red tape that we need to break through.
Give now and help us move on step closer to accessing the most effective medication ever available for people with CF.
Trikafta is a medication that could immediately change the lives of 90% of Canadians living with cystic fibrosis – the same way it's already helping people in other countries. If accessed in 2021, Trikafta can also increase the estimated median age for survival for children born with CF by over nine years, by 2030.
There is still a long road ahead before getting Trikafta and other important cystic fibrosis medications into the hands of people living with CF, and your gift to Cystic Fibrosis Canada will help by:
- Funding advocacy work to get access to Trikafta and all life-changing CF medications as quickly as possible and for as many people as possible.
- Providing critical information and support to families that can help them better understand and manage cystic fibrosis care.
- Supporting leading-edge research programs to advance knowledge, develop future CF researchers, and improve the quality of care for all cystic fibrosis patients, including the 5% of people with CF for whom there are no modulator drugs.
- Developing resources and providing 1:1 support to a network of cystic fibrosis advocates across Canada.
Please give generously. Donate today and help every Canadian impacted by cystic fibrosis, go further.